von Willebrand Disease

Humanities, Meaning & Experience

Thresholds, Identity, and the Borderlands of Diagnosis

What it means to live near the boundary between normal variation and disease

The Inherited Body

How VWD reorganizes family history, recognition, blame, and genetic responsibility

Bleeding, Time, and Anticipation

How VWD makes future injury present before bleeding happens

Blood, Shame, and Speech

Why naming bleeding transforms private experience into clinical evidence and care

Menstrual Blood and Medical Legitimacy

How menstrual bleeding becomes clinical evidence only when patients are given permission to name it

Living with von Willebrand Disease – Podcast

Click below to listen to a podcast featuring a patient with vWD and the physician who is caring for her

Parental Guilt and von Willebrand Disease – Case Study

Explore the emotional impact of an inherited diagnosis through a case study that examines parental guilt, physician communication, and compassionate support