Patient Experiences

The challenges of coping with blood diseases.


Physicians are highly trained to diagnose and treat disease. They are perhaps less well versed in understanding and responding to a patient’s experience of disease, commonly referred to as illness. Treatment decisions should always take into account patient preferences and these, in turn, are shaped by their perceptions of their ill health. In this section, we draw on patient experiences with blood conditions to better inform physicians and physicians-in-training about this critical disease perspective.