| Question/Parameter | Response |
|---|---|
| What blood disease/condition have you been diagnosed with? | MGUS |
| How old are you ? | 76 |
| What gender do you identify with ? | M |
| What symptoms did you notice? | None that I can detect |
| How did the condition affect your life? | It does not other than an initial psychological effect of discovering I have MGUS. |
| How would you describe your condition and/or treatment to someone outside of the medical profession? | Currently a low risk pre-cancerous condition, recommending a yearly blood tests to check for any change. |
| What personal information, if any, did you share with your healthcare team to assist in the development of a treatment plan (e.g., religious/spiritual beliefs, values, hobbies/interests) | Not much (some professional background), but described the events that led to the SPEP blood test that led to the MGUS discovery. |
| What did you appreciate about your healthcare team as you were navigating diagnosis and treatment? | That BI Deaconess would take me as a patient, since the Mount Auburn system was disorganized regarding MGUS specialists and monitoring. To be consistent in terms of location, I also changed my Primary Care MD to one at BI. |
| Is there anything you wish your healthcare team had done differently? | With regard to my current team, nothing that I can think of. |
| Did you feel your healthcare team cared about you? | Yes I do |
| Did you have ample time to meet with and discuss your condition/concerns with your healthcare team? | Yes |
| Do you feel like your healthcare team listened to you and/or validated your concerns? | Yes |
| Did your health care team respond to any questions you had? | Yes |
| Did the health care team communicate with you in ways that you understood? | Yes |
| Do you have any other thoughts you would like to share about you experience is general dealing with the blood disease/condition and your interactions with healthcare in trying to manage it? | No |
Nov
10
2022