|What blood disease/condition have you been diagnosed with?
|How old are you ?
|What gender do you identify with ?
|What symptoms did you notice?
|None that I can detect
|How did the condition affect your life?
|It does not other than an initial psychological effect of discovering I have MGUS.
|How would you describe your condition and/or treatment to someone outside of the medical profession?
|Currently a low risk pre-cancerous condition, recommending a yearly blood tests to check for any change.
|What personal information, if any, did you share with your healthcare team to assist in the development of a treatment plan (e.g., religious/spiritual beliefs, values, hobbies/interests)
|Not much (some professional background), but described the events that led to the SPEP blood test that led to the MGUS discovery.
|What did you appreciate about your healthcare team as you were navigating diagnosis and treatment?
|That BI Deaconess would take me as a patient, since the Mount Auburn system was disorganized regarding MGUS specialists and monitoring. To be consistent in terms of location, I also changed my Primary Care MD to one at BI.
|Is there anything you wish your healthcare team had done differently?
|With regard to my current team, nothing that I can think of.
|Did you feel your healthcare team cared about you?
|Yes I do
|Did you have ample time to meet with and discuss your condition/concerns with your healthcare team?
|Do you feel like your healthcare team listened to you and/or validated your concerns?
|Did your health care team respond to any questions you had?
|Did the health care team communicate with you in ways that you understood?
|Do you have any other thoughts you would like to share about you experience is general dealing with the blood disease/condition and your interactions with healthcare in trying to manage it?