| Question/Parameter | Response |
|---|---|
| What blood disease/condition have you been diagnosed with? | Essential thrombocythemia |
| How old are you ? | 54 |
| What gender do you identify with ? | M |
| What is your ethnicity ? | Italian American |
| What symptoms did you notice? | None |
| How did the condition affect your life? | So far no effect except taking 2 pills per day, going for a follow up appointment once per year, and worrying it might get worse. |
| How would you describe your condition and/or treatment to someone outside of the medical profession? | I have an abnormally high number of platelets in my blood such that it could possibly cause me to get an unwanted clot. |
| What personal information, if any, did you share with your healthcare team to assist in the development of a treatment plan (e.g., religious/spiritual beliefs, values, hobbies/interests) | I shared that doctors freak me out – even though I love my doctors! I just get nervous that I will get bad news. |
| What did you appreciate about your healthcare team as you were navigating diagnosis and treatment? | Very caring, helpful, and understanding. |
| Is there anything you wish your healthcare team had done differently? | No |
| Did you feel your healthcare team cared about you? | Yes! |
| Did you have ample time to meet with and discuss your condition/concerns with your healthcare team? | Yes! |
| Do you feel like your healthcare team listened to you and/or validated your concerns? | Yes! |
| Did your health care team respond to any questions you had? | Yes! |
| Do you have any other thoughts you would like to share about you experience is general dealing with the blood disease/condition and your interactions with healthcare in trying to manage it? | You guys have been great, thank you for taking care of me. |
Nov
10
2022